Privacy policy

Your privacy is very important to us. MS-Selfie (‘MS-Selfie’, ‘we’, ‘our’, ‘us’) take protection of personal data very seriously.

Information includes information provided to us by you through our website, email or other means. This policy explains:

  • who we are and how to contact us
  • why we use people’s personal data and the purpose for its use
  • how we use people’s personal data
  • what type of information we collect about you
  • how long we keep personal data
  • what rights you have in relation to your personal data
  • who you can complain to, should you need to
  • where we obtain your personal information from and whether it is from a publicly accessible source.

Who we are and information about us

MS-Selfie’s objective is to help and empower people with multiple sclerosis (MS) to understand the issues they need to consider when managing their MS. Such issues may include starting or switching between disease-modifying therapies (DMTs), diagnosing and managing sleep problems associated with MS, or interpreting side effects of medications.

If you have any questions or queries about this policy, please contact us by emailing

What is personal data and how do we use it?

Personal data can range to include your identity, your address, your contact details and your email address. Personal data also includes information that can be associated with you to include personal information. For example, your IP address.

Personal data is data you provide to us when you interact with us. Occasionally the information you provide to us may be supplemented with records maintained by third parties in order to provide you with a service or information that has been requested.

Usage information may include your IP address or something of a similar nature for any computer, mobile phone, tablet or any other device used to access our website.

Information may also be collected by automated means such as cookies, web beacons and web server logs.

Like most website operators, MS-Selfie collects non-personally identifying information of the sort that web browsers and servers typically make available, such as the browser type, language preference, referring site, and the date and time of each visitor request.

MS-Selfie’s purpose in collecting non-personally identifying information is to understand better how MS-Selfie’s visitors use its website.

From time to time, MS-Selfie may release non-personally identifying information in the aggregate, e.g., by publishing a report on trends in the usage of its website.

How we use and share your personal data 

MS-Selfie may use your personal data to:

  • allow us to respond to your concerns or queries or enable you to participate at events that we think may interest you
  • collect statistics about the behaviour of visitors to our website. For instance, MS-Selfie may monitor the most popular pages on the site. MS-Selfie may display this information publicly or provide it to others. MS-Selfie and other third-party providers we work with may automatically or passively collect certain information when you interact with us
  • operate or enhance our site (including developing new services, research, managing communication and newsletter subscriptions)
  • comply with the law, industry standards and our policies
  • conduct web analytics to track the use of our website. The information is shared with Google Analytics, who store the information in the USA. For more information, visit Google’s privacy policy.

Sharing your information

We may share your personal information from time to time in order to:

  • interact with third-party providers who influence your experience with MS-Selfie and/or who we may engage to provide services on our behalf
  • comply with UK Law or other Law agencies
  • analyse or enhance your user experience with us
  • enforce our terms of use or other terms we may have with you
  • investigate, prevent or take action with regard to illegal or suspected illegal activities, fraud, emergencies or suspected violation or breach of our agreement or the law.

How long we keep your personal data 

We will only retain your personal data for as long as necessary to fulfil the purposes we collected it for, including for the purposes of satisfying any legal, accounting, or reporting requirements.

To determine the appropriate retention period for personal data, we consider the amount, nature, and sensitivity of the personal data, the potential risk of harm from unauthorised use or disclosure of your personal data, the purposes for which we process your personal data and whether we can achieve those purposes through other means, and the applicable legal requirements.

We keep Technical and Usage Data for the periods specified by WordPress.

We will remove any of your data collected for marketing communications when you opt out/unsubscribe from marketing communications.

What options and rights you have in relation to your personal data

Under certain circumstances, you have rights under data protection laws in relation to your personal data. These rights enable you to:

  • Request access to your personal data (commonly known as a ‘data subject access request’). This enables you to receive a copy of the personal data we hold about you and to check that we are lawfully processing it.
  • Request correction of the personal data that we hold about you. This enables you to have any incomplete or inaccurate data we hold about you corrected, though we may need to verify the accuracy of the new data you provide to us.
  • Request erasure of your personal data. This enables you to ask us to delete or remove personal data where there is no good reason for us continuing to process it. You also have the right to ask us to delete or remove your personal data where you have successfully exercised your right to object to processing (see below), where we may have processed your information unlawfully or where we are required to erase your personal data to comply with local law. Note, however, that we may not always be able to comply with your request of erasure for specific legal reasons which will be notified to you, if applicable, at the time of your request.
  • Object to processing of your personal data where we are relying on a legitimate interest (or those of a third party) and there is something about your particular situation which makes you want to object to processing on this ground as you feel it impacts on your fundamental rights and freedoms. You also have the right to object where we are processing your personal data for direct marketing purposes. In some cases, we may demonstrate that we have compelling legitimate grounds to process your information which override your rights and freedoms.
  • Request restriction of processing of your personal data. This enables you to ask us to suspend the processing of your personal data in the following scenarios: (a) if you want us to establish the data’s accuracy; (b) where our use of the data is unlawful but you do not want us to erase it; (c) where you need us to hold the data even if we no longer require it as you need it to establish, exercise or defend legal claims; or (d) you have objected to our use of your data but we need to verify whether we have overriding legitimate grounds to use it.
  • Request the transfer of your personal data to you or to a third party. We will provide to you, or a third party you have chosen, your personal data in a structured, commonly used, machine-readable format. Note that this right only applies to automated information which you initially provided consent for us to use or where we used the information to perform a contract with you.
  • Withdraw consent at any time where we are relying on consent to process your personal data. However, this will not affect the lawfulness of any processing carried out before you withdraw your consent. If you withdraw your consent, we may not be able to provide certain products or services to you. We will advise you if this is the case at the time you withdraw your consent.

If you wish to exercise any of the rights set out above, please contact us (using the details at the beginning of this privacy policy). Please note that exercise of some of these rights by you may affect our ability to provide you with access (or continued access) to our website, products and services.

Changes to our privacy policy

This privacy policy is subject to changes and updates. We will post any changes on this page. It is important that the personal data we hold about you is accurate and current. Please keep us informed if your personal data changes during your relationship with us.

Third-party links

This website may include links to third-party websites, plug-ins and applications. Clicking on those links or enabling those connections may allow third parties to collect or share data about you. We do not control these third-party websites and are not responsible for their privacy statements. When you leave our website, we encourage you to read the privacy policy of every website you visit.

Opting out/unsubscribing

You can ask us or third parties to stop sending you marketing messages at any time by following the opt-out/unsubscribe links on any marketing message sent to you or by contacting us (using the details at the beginning of this privacy policy) at any time.

Where you opt out of receiving these marketing messages, this will not apply to personal data provided to us as a result of a product/service purchase, product/service experience or other transactions.

How you can contact us

Should you have any questions, queries or concerns about our privacy policy you can contact us by emailing You will receive a response within seven business days. If you feel that your concerns have not been addressed or that we were unable to help, you may refer your complaint to the Information Commissioner’s Office.